How Mes Papillons Came to Be

Francemise and Hassan Kingsberry's heartbreaking journey with the rare disorder Niemann-Pick C is a powerful testament to love, loss, and the strength of the human spirit. Their two daughters, Amira and Kelyn, were diagnosed with this devastating genetic condition, which ultimately claimed their lives—Amira at the age of 4 and Kelyn at 5. Watch their story and learn how they turned tragedy into purpose by founding Mes Papillons Foundation.